https://nova.newcastle.edu.au/vital/access/ /manager/Index ${session.getAttribute("locale")} 5 https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43709 Wed 28 Sep 2022 10:15:57 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:52466 Wed 28 Feb 2024 15:41:40 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:52050 1.1 million by 2058.2 The annual care costs are estimated to increase from $9.1 billion in 2017 to A$24.1 billion by 2056.3 Currently, there is a lack of a single valid and reliable data source for dementia identification. Welberry et al. recently demonstrated the feasibility of linking large population-based cohorts to administrative datasets to identify dementia cases at different stages of their trajectory.4 The Addressing Dementia Through Analysis of Population Traits and Risk Factors (ADAPTOR) project links data from a large Australian cohort study (followed up for 15 years) to various administrative health datasets. While the project links the same cohort study (the Sax Institute’s 45 And Up Study) and administrative datasets for dementia identification, it expands on Welberry et al.’s study by extending the data cut-off period from June 2014 to June 2018; including additional datasets and participants aged between 45–54 years; and stratifying data by sex and age group. The ADAPTOR project estimates dementia incidence, investigates the association between risk factors and incidence, and models the impact of modifiable risk factor reduction (e.g. increased physical activity, reduced alcohol consumption) on population-level dementia incidence. This paper presents preliminary findings from the project on sex and age-specific incidence of dementia and presents the most common data sources for dementia identification.]]> Wed 27 Sep 2023 15:29:45 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:45253 n = 217) who visited the specialty outpatient clinic of four hospital departments. The survey was conducted using an iPad with answers sent automatically to a secure server. The survey included items about the participants' most feared diseases and the reasons behind those fears, estimates of dementia prevalence in Japan, and preferences regarding a diagnosis of dementia and the reasons for their preference. Results: The most feared disease was cancer (43.8 %), followed by dementia (18 %). Those selecting dementia most commonly reported practical, emotional and social impacts as the reasons why they most feared this condition. Almost all participants preferred to know the diagnosis of dementia as soon as possible for themselves, with significantly fewer preferring their spouse to know as soon as possible if they had dementia (95.9 % for self vs. 67.5 % for partner/spouse, p < 0.001). On average, participants estimated that 18.1 % of Japanese people are diagnosed with dementia by age 65, while they thought that 43.7 % of Japanese people are diagnosed with dementia by age 85. Conclusions: The findings highlight a need for community education about the significant impacts of dementia on the lives of individuals and their caregivers. People were more reluctant for their spouse to receive a diagnosis as soon as possible if they had dementia. Physicians should sensitively disclose diagnosis and ensure they involve both the patient and their relatives in discussions about diagnosis disclosure.]]> Wed 26 Oct 2022 15:35:51 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:50454 Wed 26 Jul 2023 13:21:43 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:41487 Wed 24 Aug 2022 15:37:00 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:48158 Wed 24 Apr 2024 11:38:58 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:51144 Wed 23 Aug 2023 12:29:49 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:51821 Wed 20 Sep 2023 09:59:54 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:36491 Wed 20 May 2020 16:01:47 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:40887 Wed 20 Jul 2022 10:39:49 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43181 40 000 participants. Included studies consistently reported an increased risk associated with greater numbers of intraindividual risk factors or unhealthy behaviours and the opposite for healthy or protective behaviours. A meta-analysis of studies with dementia outcomes resulted in a pooled relative risk for dementia of 1.20 (95% CI 1.04 to 1.39) for one risk factor, 1.65 (95% CI 1.40 to 1.94) for two and 2.21 (95% CI 1.78 to 2.73) for three or more, relative to no risk factors. Limitations include dependence on published results and variations in study outcome, cognitive assessment, length of follow-up and definition of risk factor exposure. Conclusions The strength of the reported associations, the consistency across studies and the suggestion of a dose response supports a need to keep modifiable risk factor exposure to a minimum and to avoid exposure to additional modifiable risks. Further research is needed to establish whether particular combinations of risk factors confer greater risk than others.]]> Wed 14 Sep 2022 08:23:22 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:39133 Wed 13 Mar 2024 14:14:30 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:48072 Wed 13 Mar 2024 14:04:13 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:44101 Wed 13 Mar 2024 09:41:39 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:15270 Wed 11 Apr 2018 16:33:10 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:26277 Wed 11 Apr 2018 15:17:50 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:15187 Wed 11 Apr 2018 15:11:57 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:31383 Wed 11 Apr 2018 13:29:08 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:18825 Wed 11 Apr 2018 13:08:59 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:15170 Wed 11 Apr 2018 12:34:47 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:15100 Wed 11 Apr 2018 11:36:23 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:524 Wed 11 Apr 2018 10:44:39 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:30022 Wed 11 Apr 2018 09:14:00 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:53712 Wed 10 Jan 2024 11:10:07 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:53699 Wed 10 Jan 2024 10:48:23 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:35038 Wed 07 Jul 2021 12:04:52 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:41110 Wed 06 Mar 2024 15:23:51 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:54635 Wed 06 Mar 2024 10:59:37 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:35520 Tue 20 Aug 2019 16:30:55 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:46292 n = 51). Participants completed an online survey that consisted of fixed-responses and free-text components to assess their knowledge, attitudes and current practices relating to dementia risk factors and risk reduction techniques. The results showed that Australian primary healthcare providers have good knowledge about the modifiable risk factors for dementia; however, face several barriers to working with patients to reduce dementia risk. Commonly reported barriers included low patient motivation and healthcare system level limitations. The most commonly reported recommendations to helping primary healthcare providers to work with patients to reduce dementia risk included increasing resources and improving dementia awareness and messaging. While the results need to be interpreted in the context of the limitations of this study, we conclude that collaborative efforts between researchers, clinicians, policy makers and the media are needed to support the uptake of risk reduction activities in primary care settings.]]> Tue 15 Nov 2022 08:50:49 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:54247 Tue 13 Feb 2024 13:19:18 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:44314 Tue 11 Oct 2022 16:19:33 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:27429 Tue 11 Dec 2018 15:19:48 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:32493 Tue 10 Sep 2019 13:01:45 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:38087 Tue 03 Aug 2021 18:28:49 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:55008 Thu 28 Mar 2024 15:43:44 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:45319 Thu 27 Oct 2022 13:45:51 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:45236 Thu 27 Oct 2022 13:45:44 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:36906 Thu 16 Jul 2020 12:26:42 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43346 Thu 15 Sep 2022 15:18:57 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43323 Thu 15 Sep 2022 14:43:35 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:51680 Thu 14 Sep 2023 15:52:08 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:38637 Thu 14 Mar 2024 08:30:25 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:49316 Thu 11 May 2023 14:53:03 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:55046 Thu 04 Apr 2024 13:58:38 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:55029 Thu 04 Apr 2024 09:04:54 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:48130 Thu 02 Mar 2023 15:41:31 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:42706 Thu 01 Sep 2022 09:55:23 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:46802 Thu 01 Dec 2022 09:25:36 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:31405 Sat 24 Mar 2018 08:45:16 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:7038 Sat 24 Mar 2018 08:37:52 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:7809 Sat 24 Mar 2018 08:37:36 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:10312 0.05). In participants without dementia (n=749), neither serum ferritin in 1994/5 or 2003/4 nor change in serum ferritin between these times was related to total CAMCOG or executive function scores, with or without adjustment for gender, age, National Adult reading test, or stroke history (all p> 0.05). No relationships were observed between ferritin and cognition for participants with possible or probable dementia (n=51). All participants identified as HFE C282Y homozygous or with serum ferritin >1,000 ng/ml had normal CAMCOG scores. We conclude abnormal body iron stores (low or high) are unlikely to have clinically significant effects on cognition or dementia risk in community-dwelling older people.]]> Sat 24 Mar 2018 08:12:22 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:10445 Sat 24 Mar 2018 08:08:01 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:20806 7-fold (hazard ratio 7.34, 95%, confidence interval 5.08-10.58) and a >8-fold (hazard ratio 8.44, 95%, confidence interval 4.64-15.37) increased risk of early-onset dementia and early-onset mild cognitive impairment, respectively. In conclusion, lower cardiovascular fitness and cognitive performance in early adulthood were associated with an increased risk of early-onset dementia and mild cognitive impairment later in life, and the greatest risks were observed for individuals with a combination of low cardiovascular fitness and low cognitive performance.]]> Sat 24 Mar 2018 08:05:52 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:18124 Sat 24 Mar 2018 08:04:46 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:18865 Sat 24 Mar 2018 08:03:15 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:18748 Sat 24 Mar 2018 08:02:47 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:19672 Sat 24 Mar 2018 08:01:12 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:28087 Sat 24 Mar 2018 07:39:48 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:29265 Sat 24 Mar 2018 07:39:15 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:27391 Sat 24 Mar 2018 07:34:10 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:29758 Sat 24 Mar 2018 07:32:17 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:27185 Sat 24 Mar 2018 07:31:41 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:30671 95% in both groups. GPs and their patients both found the GPCOG to be an acceptable cognitive assessment tool. The dementia cases missed via case-finding were younger (p = 0.024) and less cognitively impaired (p = 0.020) than those detected. Conclusion: There is a very limited benefit of screening for dementia, as most people with dementia could be detected using a case-finding approach, and considerable potential for social and economic harm because of the low PPV associated with screening.]]> Sat 24 Mar 2018 07:29:36 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:24436 Sat 24 Mar 2018 07:17:20 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:23846 Synthesis of Meaning emerged from the data using interpretative phenomenological analysis. This overarched two subordinate themes: (a) Steps backward-encompassing those times when relatives hovered uncertainly, missed opportunities to engage due to advancing dementia, and felt regret and (b) Steps forward-encompassing moments of unexpected rewards, acceptance, self-forgiveness, and empathic connection with others on a similar journey. This study highlights that although often fraught with distress, positive aspects of the dementia journey are possible and offer opportunity for psychological growth and well-being.]]> Sat 24 Mar 2018 07:12:11 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:22370 Sat 24 Mar 2018 07:09:29 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:44740 Mon 24 Oct 2022 08:35:45 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:25951 Dementia naiveté; redefined intimacy, overarched Embarrassed shame; Maintaining hope; Redefining a model of intimacy; and Redefined relational intimacy and growth. Within these themes, the participants shed light on hurtful embarrassment and shame experienced by families associated with the diagnostic label given to a loved one. This label was perceived to either trigger separation, hurt and immobility through ignorance, or precipitate a frenzy of naive yet hopeful energy for seeking that elusive cure. The participants saw their role as one of enacting a new way of connecting what was with what could be. Thus, they modelled advocacy, integral care and relational intimacy. Validation came in witnessing a redefining of intimacy in many families who were able to embrace that holistic and empathic approach to the shifting presentation of dementia. Psychological well-being was observed to occur when families embraced growthful domains, e.g. acceptance, hope, relational closeness and altruistic concern for other families. Implications for future care models are discussed.]]> Mon 23 Sep 2019 13:58:06 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:26311 Mon 23 Sep 2019 12:35:15 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:31959 Mon 23 Sep 2019 11:55:41 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:36661 Mon 22 Jun 2020 16:39:42 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:46409 Mon 21 Nov 2022 11:52:39 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:40743 Mon 18 Jul 2022 13:26:33 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:35059 Mon 17 Jun 2019 11:20:45 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:41897 2, test for interaction p < 0.0001), and among men (test for interaction p < 0.0001). When the underreporting of Indigenous status on the death certificate was taken into account the relative rate increased to 2.17, 95% CI (2.07, 2.29). Indigenous Australians were also more likely to have their dementia coded as 'unspecified' on their death certificate (Odds Ratio 1.92, 95% CI (1.66, 2.21), p<0.0001), compared to the non-Indigenous group. Conclusion: This epidemiological analysis based on population level mortality data demonstrates the higher dementia-related mortality rate for Indigenous Australians especially at younger ages.]]> Mon 15 Aug 2022 12:23:26 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:29107 Mon 13 Jul 2020 13:32:36 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:36852 Mon 13 Jul 2020 10:41:17 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:40270 Mon 11 Jul 2022 12:51:23 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43626 Mon 10 Jul 2023 13:54:37 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:50759 Mon 07 Aug 2023 14:29:32 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:53536 Mon 04 Dec 2023 15:44:26 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:36066 Mon 03 Feb 2020 14:54:09 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:42491 Fri 26 Aug 2022 10:04:09 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:42489 Fri 26 Aug 2022 09:50:45 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:38688 n = 70). Data were collected via an online survey from November 2017 to January 2018. Most respondents (97%) agreed with the importance of including people at all stages of dementia in research, yet around three-quarters of respondents perceived ethical and legal rules and processes as unduly restrictive or time-consuming. Researchers reported variable practices in assessing prospective participants' capacity to consent to their studies. Various tools are used for this purpose, ranging from tools designed for research (eg, MacArthur Competence Assessment Tool for Clinical Research) to more general cognitive function screens (eg, Mini Mental State Exam). Few respondents (14%) routinely exclude people from studies who are unable to give their own consent, but instead seek permission from proxy decision-makers, such as legally appointed guardians or family carers. Respondents reported positive and negative outcomes of ethics review processes. Positive outcomes included strengthening the protections for participants with cognitive impairment while negative outcomes included delays and inconsistent decisions from different ethics committees. The findings suggest a need for improved strategies in the research context to assess and enhance the decision-making capacity of people with dementia to support appropriate opportunities for inclusion. Education for ethics committees, proxy decision-makers and other gatekeepers is also needed to reduce barriers to participation in research.]]> Fri 22 Apr 2022 15:34:36 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:42289 Fri 19 Aug 2022 14:58:23 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:42248 r = − 0.437; p < 0.001 at 12 months). Changes within QUALID and EQ-5D-5L across the same follow-up periods were also correlated (r = − 0.266; p = 0.005). The regression analyses support these findings. Conclusion: Whilst these quality of life instruments demonstrated moderate correlation, the EQ-5D-5L does not appear to capture all aspects of quality of life that are relevant to people with advanced dementia and we cannot recommend the use of this instrument for use within this population. The QUALID appears to be a more suitable instrument for measuring HRQOL in people with severe dementia, but is not preference-based, which limits its application in economic evaluations of dementia care.]]> Fri 19 Aug 2022 12:03:27 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:53221 Fri 17 Nov 2023 11:49:36 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:36927 Fri 17 Jul 2020 08:58:42 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:35845 Fri 15 Oct 2021 14:48:51 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:40610 n = 1768), at year one (n = 1373) and a restricted cohort (with possible or definite cognitive impairment) at year two (n = 370) had medication regimens documented by a research nurse during a home visit. Anticholinergic medicines were categorized as levels 1-3 (low-high potency) and summed for each participant as a measure of their ACL. RESULTS: Most participants had no change in ACL over time, but there was some turnover in the anticholinergic medications used. The mean change in ACL was 0.012 ± 0.99 from baseline to 12 months and −0.04 ± 1.3 from baseline to 24 months. Cardiovascular drugs were the most commonly used level 1 anticholinergics, followed by antidepressants and opioids. Antidepressants and urologicals were the most commonly used level 3 anticholinergics. The rate of anticholinergic deprescribing was equivalent to the rate of anticholinergic initiation, and commonly involved the level 1 drugs warfarin, furosemide and temazepam, and the level 3 drugs amitriptyline and oxybutynin. People with dementia had a higher ACL at baseline and year one compared with other participants. CONCLUSION: ACL of community-dwelling older people was very stable over time. This may represent lost opportunities for deprescribing as well as potentially inappropriate prescribing, particularly in those with cognitive impairment.]]> Fri 15 Jul 2022 11:49:13 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:47296 Fri 13 Jan 2023 10:45:52 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:47279 Fri 13 Jan 2023 10:24:32 AEDT ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:41772 Fri 12 Aug 2022 11:56:41 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:38435 80%) thought ARDs would promote autonomy in decision-making and enable opportunities for people with cognitive impairment to be included in research. Respondents indicated concern about directives not being available when needed (71%) and that ethics committees would not accept ARDs (60%). Few respondents had used ARDs, but a majority (from 57-80%) would be willing to offer ARDs for a range of research activities, such as observing behaviour and taking measures, blood samples or scans. Nearly all respondents (92%) agreed that current dissent should override prior wishes stated in an ARD. The survey findings are contextualised with attention to ethics guidelines, laws and practices to support advance research planning.]]> Fri 10 Sep 2021 15:53:32 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:51516 Fri 08 Sep 2023 12:05:45 AEST ]]> https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:37399 Fri 06 Nov 2020 16:52:03 AEDT ]]>